For therapy, training, advice and support call us on 01684 576795 or email:admin@arcos.org.uk. Alternatively, please call the new AFSIL (ARCOS Family Support and Advice Line) service on 07984 451327 on Monday or Tuesday from 9.30am -12.30pm or email: afsil@arcos.org.uk at any time.

Real life stories

Pip's Story

May 24th 1996 was a day that changed my life. An 18-year-old girl driving too fast down a country lane.

I spent 7 weeks in a coma but can only remember waking up one day in a hospital. I couldn’t speak, wasn’t safe to walk, so had to stay in bed all day, plus I was hitched up to a feeding pump, which restricted me a lot.

Now I am disabled with an acquired brain injury. Disabled… not sure I have come to terms with it, even after so long.

I don’t fall into the stereotypical picture of disability, I am not in a wheelchair – I can walk now. I am not deaf and although my vision isn’t as good as it was, I am not blind. I have some difficulties in coordination, trouble with swallowing, controlling my mouth, and palsy of my right eye. Oh yeah and I can’t talk, well, I’m dysarthric.

It gets tiring (for want of better word), I mean, people always tell me: “you are so strong and tenacious” People see me as “Pip, the girl who can’t talk, but she’ s always smiling and happy, she manages just fine with that wonderful Lightwriter…… what a godsend that machine is” – Yeah, it is good…I’d never manage without, but you try hauling that thing around everywhere with you…Gets to be a bit of a pain really.

My life has moved on. I worked at ARCOS, I partied with friends, met John, married, started an art foundation course, and went on to study drawing and applied art at UWE.

pip_communication

My first-year project was called ‘communication’. I drew myself!

People have said how I speak volumes through expression, so I tried to capture one that said it all about my not being able to talk.

I am still trying to recover, it’s extremely frustrating knowing I will never recover fully – I often despair.

There are so many things I wish I could still do; I have this dream where people could cure me, and hang on to the hope I’ll be able to talk again someday.

But with or without my voice, I just want to be treated like a normal person, I have just lost my voice, not my mind.

2020.06.25 Liri at ARCOS IMG_20200623_161517 (1)

Children

We offer a multi-sensory environment for calming relaxation and sensory stimulation. Children with a variety of disabilities  attend.

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Adults

Through specialist multi-disciplinary therapies, rehabilitation activities, and emotional support to make a difference and changing lives.

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Professionals

We provide training in understanding best practice care and the latest technological support for a range of conditions for healthcare professionals.

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Carers

ARCOS provide physical and online training, information, and advice. You also gain a network of peer support to assist you through your journey.